Link: Deeply Touching and Emotional Photos Document the Life of a Multi-Handicapped 11-Year-Old Boy | Feature Shoot
My goal has been to understand Jon and his feelings. It took a while before I could read his very special body languages. At first I spent a lot of time just to get to know him and his family before I pulled the camera out. After a while they got more relaxed and comfortable with me being around, so that I could come closer and make more intimate moments with my camera. It has been a challenge to create that closeness and to capture his personality through the lens, as well as an eye opening experience for me personally and photographically.—Sara Marie Ramsoe